https://neuroendocrinecancer.org.uk

Home - Neuroendocrine Cancer UKNeuroendocrine Cancer UK is a non-profit organisation dedicated to supporting individuals and families affected by neuroendocrine cancer. We provide information, support services, advocacy, and resources to empower patients, caregivers, and healthcare professionals in the neuroendocrine cancer community. Our mission is to raise awareness, advance research, and improve the quality of life for those living with neuroendocrine cancer.Home - Neuroendocrine Cancer UK Support Search for: DONATE Neuroendocrine Cancer Neuroendocrine Cancer UK Virtual Handbook What Is Neuroendocrine Cancer? Hormones Just Diagnosed Symptoms and Syndromes Tests & Getting Results Specialist Care & Centres of Excellence Your Cancer Site Adrenal Appendix Breast Cancer of the Unknown Primary Duodenal Female Reproductive System Goblet Cell Large Bowel Lung Pancreas Pheochromocytoma and Paraganglioma (PPGL) Prostate Rectum Secondary NC SKIN (MCC) Merkel Cell Carcinoma Small Bowel Stomach Testicles Thymus Thyroid Treatments Living with Neuroendocrine Cancer Diet & Nutrition End of Life Help and Support Support Groups Join a Support Group Counselling and Mental Health Patient Resources Stories & Experiences Events and Conferences Webinars Podcasts Blogs Our Online Community Financial Support Research & Our Campaign Work Research Find a Clinical Trial Research Information Hub Funding Research Research Papers from around the World Neuroendocrine Cancer: An Ideal Patient Care Pathway Advancing Neuroendocrine Cancer Research Practice-changing Grants Spotlight on Neuroendocrine Cancer Open Conversations World Neuroendocrine Cancer Day Neuroendocrine Life Alliance Hero Awards Support Us & Get Involved Donate In Memory Fundraise for us Cakes for a Cause Daily Dip 4 Dave Raise funds online Shop Corporate and Charity Support Leave a Gift in Your Will Get Involved Have Your Say / Share Your Experience Invisible Cancer News News Newsletters and Our Work For Health Professionals Practical Guides Supporting your Patients Neuroendocrine Cancer Patient Case Studies for Healthcare Professionals Professional Development Courses Neuroendocrine Cancer Guidelines About Us Our Ambassadors, Medical Advisory Board and Collaborators Annual Accounts and Strategy Contact Us Neuroendocrine Cancer Neuroendocrine Cancer UK Virtual Handbook What Is Neuroendocrine Cancer? Hormones Just Diagnosed Symptoms and Syndromes Tests & Getting Results Specialist Care & Centres of Excellence Your Cancer Site Adrenal Appendix Breast Cancer of the Unknown Primary Duodenal Female Reproductive System Goblet Cell Large Bowel Lung Pancreas Pheochromocytoma and Paraganglioma (PPGL) Prostate Rectum Secondary NC SKIN (MCC) Merkel Cell Carcinoma Small Bowel Stomach Testicles Thymus Thyroid Treatments Living with Neuroendocrine Cancer Diet & Nutrition End of Life Help and Support Support Groups Join a Support Group Counselling and Mental Health Patient Resources Stories & Experiences Events and Conferences Webinars Podcasts Blogs Our Online Community Financial Support Research & Our Campaign Work Research Find a Clinical Trial Research Information Hub Funding Research Research Papers from around the World Neuroendocrine Cancer: An Ideal Patient Care Pathway Advancing Neuroendocrine Cancer Research Practice-changing Grants Spotlight on Neuroendocrine Cancer Open Conversations World Neuroendocrine Cancer Day Neuroendocrine Life Alliance Hero Awards Support Us & Get Involved Donate In Memory Fundraise for us Cakes for a Cause Daily Dip 4 Dave Raise funds online Shop Corporate and Charity Support Leave a Gift in Your Will Get Involved Have Your Say / Share Your Experience Invisible Cancer News News Newsletters and Our Work For Health Professionals Practical Guides Supporting your Patients Neuroendocrine Cancer Patient Case Studies for Healthcare Professionals Professional Development Courses Neuroendocrine Cancer Guidelines About Us Our Ambassadors, Medical Advisory Board and Collaborators Annual Accounts and Strategy Contact Us Search for: DONATE Welcome to Neuroendocrine Cancer UK World Cancer Day - The Invisible Cancer report is here! World Cancer Day: The Invisible Cancer report is here! Raise awareness. Make it visible. INVISIBLE CANCER REPORT Virtual HandbookWelcome to our interactive practical toolkit for all those living with neuroendocrine cancer. Select here to read EventsDiscover upcoming events, webinars, support group meetings, and fundraisers dedicated to raising awareness and supporting those affected by neuroendocrine cancer. SELECT HERE TO REGISTER FOR AN EVENT NewsStay up-to-date with the latest advancements, research findings, and community updates. Select here to read the latest news SupportWe’re Temporarily Pausing New Counselling Self-Referrals Demand for our counselling service is currently very high, and to keep people safe we’ve paused new self-referrals until 7th April. Support is still available through our Helpline (0800 434 6476), your GP or Specialist Team, and crisis services including SHOUT (85258) and the Samaritans (116 123). Select Here for Support Subscribe to our newsletterStay informed with the latest updates, events, and resources by subscribing to our newsletter. select here to subscribe Cakes for a Cause Host a ‘Cakes for a Cause’ event with your friends and family and help us raise funds and awareness while supporting those affected by neuroendocrine cancer. Click Here Welcome to Neuroendocrine Cancer UK. We are here to provide support, raise awareness, and offer resources for individuals affected by neuroendocrine cancer. Whether you are seeking information, looking for support, or hoping to get involved in our mission, we are here to guide you. Together, we can make a difference in the lives of those living with this often misunderstood cancer. GET IN TOUCH FollowFollowFollowFollowFollow Overview of Neuroendocrine Cancer UK Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer. Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions. At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves. We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease. NCUK Virtual Patient Handbook Latest News and Updates A monthly donation helps us to help others by Clare Gerrard | February 24, 2026 | | 0 CommentsOne of the most effective ways to support our work is through a monthly donation. Regular giving allows us to plan ahead, expand our services, and provide ongoing support to people when they need it the most. Even a small monthly contribution can make a real... Read More The Invisible Cancer – In the Press by Leanne Talbot | February 17, 2026 | | 0 CommentsFollowing the launch of our Invisible Cancer report on World Cancer Day, neuroendocrine cancer has received widespread national and regional media coverage - this page brings together those articles to highlight the urgent need for earlier diagnosis, greater... Read More Your Voice Matters: Help Shape the Future of Genomics by Beth Chesser | February 16, 2026 | | 0 CommentsNHS East Genomics invites patients and the public to be part of the future of genomics in our region. Discover the different ways you can get involved and help shape work across the East Midlands and the East of England.   East Genomics Patient and Public Voice... Read More New report launched on World Cancer Day highlights the hidden impact of neuroendocrine cancer by Clare Gerrard | February 4, 2026 | | 0 CommentsOn World Cancer Day 2026, we are proud to launch our new report, The invisible cancer: How delays, misdiagnosis and unequal treatment of neuroendocrine cancer in the UK are costing lives, shining a spotlight on a cancer that remains widely misunderstood and too often... Read More Manchester Broncho-Pulmonary Neuroendocrine Cancer Education Event by Clare Gerrard | January 16, 2026 | | 0 CommentsThis week, healthcare professionals from across the UK came together in Manchester for a dedicated, multidisciplinary education event focused on improving care for patients with Broncho-Pulmonary Carcinoids (BPCs). The full-day programme was designed to ensure... Read More Less Survivable Cancers Awareness Week by Clare Gerrard | January 14, 2026 | | 0 CommentsThe Less Survivable Cancers Awareness Week observed annually in January, highlights the persistent and high priority need for better early diagnosis, research, and funding for six named cancers* that have significantly lower survival rates than others, aiming to... Read More Clinical Trial Opportunity for People with Insulinomas by Clare Gerrard | January 12, 2026 | | 0 CommentsClinical Trial Opportunity for People with Insulinomas Rezolute is a company working on new treatments for rare diseases. They are running a phase 3 clinical trial called the upLIFT study. This study is testing a new medicine called Ersodetug to see if it can safely... Read More NHSE Specialised Commissioning Patient and Public Voice (PPV) Partner Roles by Leanne Talbot | December 18, 2025 | | 0 CommentsNHS England is recruiting for the following PPV partner roles: NHS England » Specialised commissioning patient and public voice (PPV) partner roles PPV partner for the Clinical Priorities Assurance Group - closing date 4 January 2026 PPV partner for NHS England... Read More Looking Back on 2025: A Year of Progress and Hope by Leanne Talbot | December 17, 2025 | | 0 Commentshttps://youtu.be/6fCWMsNMZxs   As 2025 draws to a close, it feels the right moment to reflect on an extraordinary year for Neuroendocrine Cancer UK - a year shaped by courage, collaboration and a community determined to make things better for everyone affected by... Read More The James Lind Alliance Neuroendocrine Cancer Priority Partnership Steering Group by Clare Gerrard | December 9, 2025 | | 0 CommentsHi – my name is Elaine and I’m a member of the Manchester Patient Support Group. I was diagnosed with an insulinoma almost 14 years ago and am under the care of The Christie NET Centre of Excellence. During one of our meetings in the summer, I was asked if I would... Read More Get Involved and Make a Difference Join us in our mission to support those affected by neuroendocrine cancer and advance research and awareness.There are many ways you can get involved and make a difference. Select the image to learn more Volunteer Become a part of our dedicated team and contribute your time and skills to support patients and families. Fundraise Organise events, challenges, or campaigns to raise funds for neuroendocrine cancer research and support services. Donate Your generous donations help us provide essential resources, support programs, and fund vital research initiatives. Get in Touch At Neuroendocrine Cancer UK, we’re always here to support you. Whether you need advice, have questions, or want to get involved, our team is ready to assist. You can contact us through our online form, by email, or over the phone. We value your input and are happy to help in any way we can. Don’t hesitate to reach out — we look forward to hearing from you. Select here to contact us Where would you like to visit next? Select the image to learn more.  Symptoms  Tests  Newly diagnosed  Treatments  Your cancer site  What is neuroendocrine cancer?  Living with neuroendocrine cancer  How we can support you  NC research and our campaign work  End of life care  View and download our information, guides and factsheets  View our Neuroendocrine Cancer Virtual Patient Handbook About Us Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer. FollowFollowFollowFollowFollowFollow Subscribe Subscribe to our Newsletter to stay update with our latest news. SUBSCRIBE Contact  Helpline: 0800 434 6476  Office: 01926 883 487  Holly House, 74 Upper Holly Walk, Leamington Spa CV32 4JL  Email us © 2026 Neuroendocrine Cancer UK | Registered charity number: 1092386 | Terms & Conditions | Privacy Policy | Site by Colour Cubed The Helpline will be closed Wednesday 11th and 18th March 1-4pm. It will be open as usual from 10am-1pm on those dates. If you would like to arrange a callback - you can complete a Contact Us form - available here Close X World Cancer Day: The Invisible Cancer Report is Here World Cancer Day: The Invisible Cancer report is here! Raise awareness. Make it visible. Read now | Share Closeengben-GB1773645961https://neuroendocrinecancer.org.uk

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