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International Alliance of ALS/MND AssociationsInternational Alliance of ALS/MND Associations Skip to primary navigation Skip to main content Skip to footerEmailFacebookLinkedInTwitterYouTube Search this website International Alliance of ALS/MND AssociationsMembers' Login Contact Join the Alliance Donate What is ALS/MNDFind a Member AssociationSupport for PALS & CALS Fundamental Rights for People with ALS/MND and CaregiversResearch Voice PreservationOpen ScienceExpanded AccessUnderstanding ALS/MND ResearchImproving Regulatory PathwaysRight to TryUS FDA Orphan Drug DesignationUnproven (Off-Label) TreatmentsOpen Label Extension Advocacy Advocacy ToolkitEmergency Preparedness ToolkitEquitable Access to TherapiesRecommendations for Trial Sponsors Clinical Care Genetic Counselling & TestingMental Health SupportNursing and Symptom ManagementNutrition and SwallowingOccupational Therapy and Activities of Daily LivingPhysiotherapy and MobilityRespiratory CareSpeech Therapy and CommunicationSupport for Family & CaregiversTechnologyGlobal Clinic Locator Drugs in Development AB Science – MasitinibBrainStorm Cell Therapeutics – NurOwnClene Nanomedicine – CNM-Au8ILB – TikomedKadimastem – AstroRxMitsubishi Tanabe Pharma America – Oral EdaravoneNeuronata-R/LenzumestrocelNeuroSense – PrimeCNeuvivo – NP001Prilenia Therapeutics – PridopidineSOD1 Therapies & TrialsT Regulatory Cell TherapiesUlefnersen – Ionis Pharmaceuticals Approved Drugs NuedextaRadicava/EdaravoneRiluzole/TiglutikRozebalamin/MethylcobalaminTofersen/Qalsody Drugs No Longer in Development Amylyx – AMX0035Collaborative Medicinal Development – CuATSMCytokinetics – ReldesemtivOrphazyme – ArimoclomolTUDCA Trial Support for Health Professionals Breaking the News in ALS/MNDR.A.C.E. To Diagnose ALS/MND Events/Programs Calendar of Events/ProgramsAlliance MeetingAllied Professionals ForumAlliance WebinarsALS/MND ConnectGlobal Day CalendarMarch of FacesPatient Fellows ProgramAlliance AcademyInternational Symposium About Who We AreALS/MND Health Literacy MapBoard of TrusteesAdvisory Councils/Committees Scientific Advisory CouncilPALS and CALS Advisory CouncilAdvocacy and Public Policy ForumResearch Directors ForumGovernance CommitteeFinance Committee StaffHistoryArchives NewslettersMeetings Awards Forbes Norris AwardHumanitarian AwardAllied Health Professional AwardStudent Innovation Award Members Member RegistrationForgot Password Webinar: Live and On-Demand Check out the Alliance's upcoming webinars! Missed one or unable to join us live? All webinars are recorded and are made available on the Alliance website following the live event with English and Spanish subtitles. Register or watch recordings A World Free of ALS/MND The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. We help members thrive by adding value to existing and future associations through curation and creation of information and by acting as a global gateway through which Alliance Members, PALS and CALS, internal, and external stakeholders connect. Our two main focuses are Community and Capability and we can do this as we build our Capacity.   #ALSMNDWithoutBorders and messages from around the world FooterSubscribe to our Bi-Monthly Newsletter Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations. "*" indicates required fields First name*Last name*Email*  Sign up EmailThis field is for validation purposes and should be left unchanged. EmailFacebookLinkedInTwitterYouTube Return to top of page Contact | Disclaimer | Privacy Notice & Cookies | Sitemap Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' loginenusen-US1773911785https://alsmndalliance.org

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